Alice Panchaud, PharmD, PhD, clinical pharmacist and pharmacoepidemiologist, CHUV, Lausanne University Hospital, Switzerland, explains how researchers can anonymously enter patient data to the international Zika registry, which collects data on women exposed to the mosquito-borne virus during pregnancy.
Interview Transcript (slightly modified for readability)
“[This Zika] registry, is based on a REDCap database, [which] is a web database. So, anyone that has the approval of their authority to share data with us would be able to get a log-in [ID and password] so they would be able to log [into] this database using just the website. It’s very convenient. Then, they would be able to put information on their patients, the information they want to share with us.
We are collecting only anonymous data, so only anonymous information. Furthermore, we don’t want to have information that is going to lead to the patient, like where they live, city names. We don’t want that. We [also] don’t want date of birth and things like that, even for the baby. So it’s really protected for that.”
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